Senior Notes

by Cora Flood

We have just wrapped up a series of presentations and public education workshops on Alzheimer’s disease. November was National Alzheimer’s Month in the US so we thought it important to highlight the support services that are available to community members affected directly.

Our presenters Will and Mike were warmly received in both Quincy and Brighton.

One topic that they highlighted I thought would be of importance to you our regular readers is a subject that often gets sidelined or dismissed. What about the needs of the caregiver. How does the person taking care of the ill family member really take care of herself/ himself.

One very useful way recommended by the Alzheimer’s Association to ensure that primary caregivers don’t get worn out or depressed in their constant focus on the Alzheimer’s patient is to consider joining a support group.

The Alzheimer’s Association suggests “the right support group offers a lifeline for caregivers. The primary purpose of a group should be to help provide its members with emotional support as well as of up to date information about the disease and care giving skills. The combination of education and support will assist you where ever you are in your care giving and getting to know others who truly understand what you are going through can be surprisingly helpful.

Each support group is different. The format and atmosphere are created by the leaders as well as the participants. Even if it is not required, call the group leader before you go to the meeting.

· Ask about the make up and size of the group.-spouses, adult children, men, women.

· Ask about the typical format. This is a great way to find out if you feel drawn to this particular leader and group.

· Ask how confidentiality is handled. All information shared at a support group should be kept strictly confidential unless it posses a risk of safety to the caregiver or patient.

· Ask about the group leaders’ experience –knowledge of Alzheimer’s disease, length of time facilitating the group

If you decide to attend, this conversation will make your first meeting easier.

Even if the first group you attend isn’t what you want, don’t get discouraged. TALK WITH THE GROUP LEADER ABOUT YOUR REACTION. Every meeting is different and it may be that particular meeting was / wasn’t typical of what usually happens. We all spend time finding the right hairdresser, physician or auto mechanic. it make take a time to locate the support group that best meets your needs and style. Be patient, as many seasoned support members say….”it’s well worth it.” Source Alzheimer’s Association of MA/ NH

If you have further questions about this disease or about any of the information shared at our community presentations don’t hesitate to call either myself at the IPC (617) 479 7404 ext 13.

Or directly to the Alzheimer’s Association Information Line at 1-800- 272-3900.

Warmest wishes for a pleasant week ahead… Cora